Disability Law

Stories of Rare Diseases Sought for Social Security Administration

The National Organization for Rare Disorders (NORD) reports that the Social Security Administration (SSA) is seeking input from both physicians and patients on rare diseases. The SSA conducted hearings last December as part of an effort to better understand rare diseases so that patients will encounter fewer delays and frustrations when they apply for Social Security disability assistance. Because many rare diseases are not on the SSA’s approved list of diseases, the severity of their impact may be underestimated. As a result, applicants often are initially turned down but later approved. Many people go through unnecessary delay, frustration, and expense in seeking to have an initial decision revisited.
http://rarediseases.about.com/b/2008/10/07/nord-wants-your-social-security-administration-stories.htm
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Full post as published by Social Security Disability Law Blog on November 01, 2008 (boomark / email).